Arianna Gentilini joined the department in 2020. Her PhD focuses on the role of patient organisations and other stakeholders in innovation of and access to medicines for rare diseases in high-income countries. She is particularly interested in understanding the role patient advocacy plays in R&D and how patients’ voices are integrated in the regulatory and reimbursement processes. In her research, Arianna employs both quantitative and qualitative methods, including econometric analysis, document analysis, and interviews.
Her research has been published in high-impact journals, such as the , and, and has received media coverage in .
Alongside her research, Arianna works as a Senior Researcher at the Medical Technology Research Group (MTRG), ÐÓ°ÉÂÛ̳ Health as well as consulting for the World Bank. She is also a Visiting Fellow at Imperial College Business School. Prior joining ÐÓ°ÉÂÛ̳, she worked as consultant in HEOR consultancies focusing on health economics and market access. She holds an MSc in International Health Policy (Health Economics) with Distinction from ÐÓ°ÉÂÛ̳ and a BSc in International Economics with Honours from the University of Padova.
Dissertation title:
The role of patient organisations in innovation and access: Evidence from rare diseases
Dissertation supervisor(s):
Dr Panos Kanavos, Professor Alistair McGuire, Professor Andrew Street
CV:
Please view from here.
Publications:
- Gentilini A, Miraldo M (2023). The Role of Patient Organisations on Research and Development: Evidence from Rare Diseases. Social Science & Medicine.
- Kanavos P, Visentin E, Gentilini A (2023). Algorithms and heuristics of health technology assessments: A retrospective analysis of factors associated with HTA outcomes for new drugs across seven OECD countries. Social Science & Medicine.
- Gentilini A, Parvanova I (2023). Industry Funding of Patient Organisations in the United Kingdom: A Retrospective Study of Commercial Determinants, Funding Concentration and Disease Prevalence. BMJ Open;
- Parvanova I, Gentilini A, Cushing J, Naci H (2023). Safeguarding NICE from patient groups’ conflicts of interest. BMJ;